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December 2022; 12 (6) Research ArticleOpen Access

Humanistic Burden of Huntington Disease

Evidence From the Huntington Disease Burden of Illness Study

Idaira Rodriguez Santana, Samuel Frank, Maria Doherty, Rosa Willock, Jamie Hamilton, Hayley Hubberstey, Cath Stanley, Louise Vetter, Michaela Winkelmann, Ricardo E. Dolmetsch, Nanxin Li, Sarah Ratsch, Talaha M. Ali
First published October 12, 2022, DOI: https://doi.org/10.1212/CPJ.0000000000200095
Idaira Rodriguez Santana
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Samuel Frank
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Maria Doherty
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Rosa Willock
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Jamie Hamilton
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Hayley Hubberstey
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Cath Stanley
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Louise Vetter
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Michaela Winkelmann
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Ricardo E. Dolmetsch
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Nanxin Li
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Sarah Ratsch
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Talaha M. Ali
HCD Economics (IRS, MD, RW); Harvard Medical School/Beth Israel Deaconess Medical Center (SF); CHDI Foundation (JH); Huntington's Disease Youth Organization (HDYO) (HH); Huntington's Disease Association (CS); Huntington's Disease Society of America (LV); Deutsche Huntington-Hilfe e.V (MW); and UniQure (RED, NL, SR, TMA), Inc, Lexington, MA.
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Full PDF
Citation
Humanistic Burden of Huntington Disease
Evidence From the Huntington Disease Burden of Illness Study
Idaira Rodriguez Santana, Samuel Frank, Maria Doherty, Rosa Willock, Jamie Hamilton, Hayley Hubberstey, Cath Stanley, Louise Vetter, Michaela Winkelmann, Ricardo E. Dolmetsch, Nanxin Li, Sarah Ratsch, Talaha M. Ali
Neurol Clin Pract Dec 2022, 12 (6) e172-e180; DOI: 10.1212/CPJ.0000000000200095

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