Share

December 2022; 12 (6) Research Article

Health Care Utilization in the Last Year of Life in Parkinson Disease and Other Neurodegenerative Movement Disorders

Erica D. McKenzie, Veronica A. Bruno, Andrew Fong, Pin Cai, Madalene Earp, Richard M. Camicioli, Ingrid de Kock, Daniela Buttenschoen, Aynharan Sinnarajah, Janis Miyasaki
First published October 12, 2022, DOI: https://doi.org/10.1212/CPJ.0000000000200092
Full PDF
Citation
Permissions

Make Comment

See Comments

Downloads
83

Share

Article Information

vol. 12 no. 6 388-396
DOI: 
https://doi.org/10.1212/CPJ.0000000000200092
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
2163-0402
Online ISSN: 
2163-0933
History: 
  • Received April 18, 2022
  • Accepted August 31, 2022
  • First Published October 12, 2022.

Article Versions

Copyright & Usage: 
© 2022 American Academy of Neurology

Author Disclosures

    1. Erica D. McKenzie, MD*,
    2. Veronica A. Bruno, MD, MPH*,
    3. Andrew Fong,
    4. Pin Cai,
    5. Madalene Earp,
    6. Richard M. Camicioli, MD,
    7. Ingrid de Kock, MD,
    8. Daniela Buttenschoen, MD,
    9. Aynharan Sinnarajah, MD, MPH† and
    10. Janis Miyasaki, MD, MEd†
  1. Erica D. McKenzie, MD*,
    2. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  2. Veronica A. Bruno, MD, MPH*,
    3. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  3. Andrew Fong,
    4. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  4. Pin Cai,
    5. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. Clinical Workforce Planning, Alberta Health Services

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Madalene Earp,
    6. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Richard M. Camicioli, MD,
    7. Scientific Advisory Boards:

    1. 1. Canadian Institute of Health Research, Grant Reviews College: No honoraria; 2. Michael J. Fox Foundation, Gait Advisory Board: No honoraria; Alzheimer Society of Canada Covid Working Group, No honoraria. 3. Scientific Advisor. PD Dementia Clinical Trial (Stephen Pasternak, Western University) Weston Foundation Funded. No Honoraria.

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. 1. . Dementia and Geriatric Cognitive Disorders, editorial board, 2011-; 2 Frontiers Neuroscience of Aging, editorial board, 2009-.; 3. Parkinsonism and Related Disorders, 2016-2021; Journal of Gerontology, Editorial BoardNo honoraria

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. 1. Canadian Institutes for Health Research (CIHR) Team Grant: Canadian Consortium for Neurodegenerative Diseases of Aging (CCNA), Team Lead; 2014-ongoing; Comprehensive Assessment of Neurodegeneration and Dementia (Compass-ND), 2014-ongoing, Co-Investigator. 2. Brain Canada/Parkinson Canada, Canadian Open Parkinson Network , Co-investigator, 2018-present3. CIHR, Gait as a clinical marker to predict progression to dementia syndromes in MCI. 2017-2022. Co-investigator.4. CIHR/Brain Canada. Novel blood and neuroimaging markers of Alzheimer's disease and Cerebral Amyloid Angiopathy, 2016-2023. Co-investigator.5. Grants from same agencies, NIH and Alberta Innovates Solutions as collaborator-coinvestigators. CRIO Grant (Alberta Innovates Solutions).6. Site investigator, Clinical Trial, SPARX-3, NIH sponsored. 2021-ongoing

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. 1. Alzheimer Society of Alberta and the Northwest Territories (SYNAD) Small Equipment Grant: OPAL Body Worn Sensors, Funded, December 2020. Principle Investigator.

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  7. Ingrid de Kock, MD,
    8. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  8. Daniela Buttenschoen, MD,
    9. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  9. Aynharan Sinnarajah, MD, MPH† and
    10. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. (1) OncologyEducation, Speaking honoraria

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. (1) Alberta Health Services, Medical Informatics Lead Physician.(2) Lakeridge Health, Division Head for Palliative Care.(3) Alberta Health Services, Palliative Physician Consultant.(4) Lakeridge Health, Palliative Physician Consultant.

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. (1) Health Canada, Principal investigator, 2021-2025.(2) Alberta Health, Principal investigator, 2022-2024.(3) Canadian Institutes of Health Research, Co-Principal Investigator, 2021-2022.(4) Canadian Cancer Society. Grant #707151. Principal investigator, 2021-2026.(5) Canadian Foundation for Health care Improvement. Co-Principal investigator, 2021-2022.(6) Applied Research in Cancer Control. Principal investigator. 2021-2022.(7) Canadian Institutes of Health Research. Principal investigator. 2020-2022.(8) Alberta Innovates. Principal Investigator. 2020.(9) Canadian Institutes of Health Research. Co-Principal Investigator. 2017-2021.(10) Canadian Institutes of Health Research. Co-Investigator. 2022-2025(11) The College of Family Physicians of Canada. Co-investigator. 2021-2022.(12) Health Canada. Co-investigator. 2021-2023(13) Choosing Wisely Alberta. Co-investigator. 2021-2023.(14) Canadian Institutes of Health Research. Co-investigator. 2021-2024.(15) Canadian Institutes of Health Research. Co-investigator. 2021-2022(16) Canadian Institutes of Health Research. Co-investigator. 2021-2023.(17) Canadian Foundation for Health care Improvement. Co-investigator. 2021-2021(18) Alberta Innovates Health Solutions. Co-investigator. 2020-2023.(19) Canadian Institutes of Health Research. Co-investigator. 2020.(20) Canadian Institutes of Health Research. Co-investigator. 2019-2023.

    Research Support, Academic Entities:

    1. (1) University of Calgary, Academic Physician.

    Research Support, Foundations and Societies:

    1. (1) Mach-Gaensslen Foundation(2) Alberta Cancer Foundation

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  10. Janis Miyasaki, MD, MEd†
    11. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. University of SaskatchewanInternational Parkinson and Movement Disorders SocietyWorld Congress on Parkinson and Related DisordersWorld Parkinson Congress

    Editorial Boards:

    1. Associate Editor, Clinical Research and Trials, Parkinsonism and Related Disorders

    Patents:

    1. NONE

    Publishing Royalties:

    1. Up to Date - Functional Movement Disorders

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. Vice President of the American Academy of Neurology (April 2021-2023)Treasurer of the American Academy of Neurology (2017-2021)Board of Directors, Parkinson FoundationBoard of Directors, Parkinson Foundation

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. Canadian Consortium on Neurodegeneration in AgingCanadian Open Parkinson Network, Brain Canada 2018-2022, Brain CanadaPCORI: Implementing palliative care in Parkinson Centers of Excellence 2021-2023Social Sciences and Humanities Research Council: Ethnic and Gender Disparities in Access to Deep Brain Stimulation 2022-2025

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. University Hospital Foundation grantParkinson Foundation: International Outreach Grant

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  1. Department of Clinical Neurosciences (EDM, VAB), Cumming School of Medicine, University of Calgary, AB, Canada; Data & Analytics (AF), Alberta Health Services, Calgary, Canada; Clinical Workforce Planning (PC, ME), Alberta Health Services, Calgary, Canada; Division of Neurology (RMC, JM), Department of Medicine, Faculty of Medicine and Dentistry, University of Alberta, Edmonton, Canada; Department of Oncology (IK, DB), Faculty of Medicine and Dentistry, University of Alberta, Edmonton, Canada; and Department of Medicine (AS), School of Medicine, Queen's University, Kingston, Ontario Canada.
  1. Correspondence
    Dr. Bruno veronica.bruno{at}ucalgary.ca
View Full Text

Article usage

Article usage: October 2022 to February 2023

AbstractFullPdfSource
Oct 2022283037Highwire
Nov 20229505Highwire
Dec 20226344528Highwire
Jan 2023257159Highwire
Feb 202310274Highwire

Cited By...

The Nerve!: Rapid online correspondence

No comments have been published for this article.
Comment

REQUIREMENTS

If you are uploading a letter concerning an article:
You must have updated your disclosures within six months: http://submit.neurology.org

Your co-authors must send a completed Publishing Agreement Form to Neurology Staff (not necessary for the lead/corresponding author as the form below will suffice) before you upload your comment.

If you are responding to a comment that was written about an article you originally authored:
You (and co-authors) do not need to fill out forms or check disclosures as author forms are still valid
and apply to letter.

Submission specifications:

  • Submissions must be < 200 words with < 5 references. Reference 1 must be the article on which you are commenting.
  • Submissions should not have more than 5 authors. (Exception: original author replies can include all original authors of the article)
  • Submit only on articles published within 6 months of issue date.
  • Do not be redundant. Read any comments already posted on the article prior to submission.
  • Submitted comments are subject to editing and editor review prior to posting.

More guidelines and information on Disputes & Debates

Compose Comment

More information about text formats

Plain text

  • No HTML tags allowed.
  • Web page addresses and e-mail addresses turn into links automatically.
  • Lines and paragraphs break automatically.
Author Information
NOTE: The first author must also be the corresponding author of the comment.
First or given name, e.g. 'Peter'.
Your last, or family, name, e.g. 'MacMoody'.
Your email address, e.g. higgs-boson@gmail.com
Your role and/or occupation, e.g. 'Orthopedic Surgeon'.
Your organization or institution (if applicable), e.g. 'Royal Free Hospital'.
Publishing Agreement
NOTE: All authors, besides the first/corresponding author, must complete a separate Publishing Agreement Form and provide via email to the editorial office before comments can be posted.
CAPTCHA
This question is for testing whether or not you are a human visitor and to prevent automated spam submissions.

Vertical Tabs

You May Also be Interested in

Back to top
Advertisement

Related Articles

Alert Me