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October 2022; 12 (5) Commentary

Coordination of Care Among Physical Therapists and Neurologists in Huntington Disease

Nora E. Fritz, Deb Kegelmeyer, Ashwini K. Rao, Lori Quinn, Martha A. Nance, Anne Kloos
First published August 24, 2022, DOI: https://doi.org/10.1212/CPJ.0000000000200073
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Article Information

vol. 12 no. 5 377-381
DOI: 
https://doi.org/10.1212/CPJ.0000000000200073
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
2163-0402
Online ISSN: 
2163-0933
History: 
  • Received October 19, 2021
  • Accepted July 18, 2022
  • First Published August 24, 2022.

Article Versions

Copyright & Usage: 
© 2022 American Academy of Neurology

Author Disclosures

    1. Nora E. Fritz, PhD, PT, DPT, NCS,
    2. Deb Kegelmeyer, MS, PT, DPT, GCS,
    3. Ashwini K. Rao, EdD, OTR/L, FAOTA,
    4. Lori Quinn, EdD, PT,
    5. Martha A. Nance, MD and
    6. Anne Kloos, PhD, PT, NCS
  1. Nora E. Fritz, PhD, PT, DPT, NCS,
    2. Scientific Advisory Boards:

    1. (1) Served on MS Scientific Advisory Board for Helius Medical<br>(2) Serve on the DSMB of an R33 Grant at my University

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. (1) Honoraria provided from the study Sponsors - Huntington <br>Study Group, European Huntington Disease Network, The Griffin <br>Foundation<br>(2) Honoraria for speaking at Consortium of Multiple Sclerosis <br>Centers Annual Meeting

    Editorial Boards:

    1. (1) Journal of Neurologic Physical Therapy

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. (1) Employed at Wayne State University, Associate Professor, <br>2015- present.

    Consultancies:

    1. (1) TEVA

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. (1) TEVA #TV50717-NDG-60338 - PI - 2022-2023

    Research Support, Government Entities:

    1. (1) NIH #HD102337 - CoPI - 2021-2026

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. (1) National Multiple Sclerosis Society # RG2111-38718 - <br>2022-2025<br>(2) National Multiple Sclerosis Society #PP-1912-35300 - <br>2020-2021<br>(3) Consortium of Multiple Sclerosis Centers Pilot Grant - <br>2020-2021

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  2. Deb Kegelmeyer, MS, PT, DPT, GCS,
    3. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. 1. Medbridge - I receive royalties for online continuing <br>education courses that I created. 2016 to present<br>McGraw-Hill Publishing - I receive royalties for authorship <br>of a book 2016 to present

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. I do consultant work with Create a Better You which is owned <br>by Neuvanta LLC

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. I am on the board of Neuvanta LLC

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. Honda R&D - I have done research related to exoskeleton <br>robotic devices for clients with stroke that is funded <br>through Honda R&D. Money is received in the form of release <br>time paid to Ohio State University.

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Michael J Fox Foundation - I am an investigator on a study <br>funded by the MJFF.

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. Multiple legal firms since 2005. The primary firm for which <br>I <br>have done expert testimony is Reminger

  3. Ashwini K. Rao, EdD, OTR/L, FAOTA,
    4. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. Non-profit entity: Huntington's Disease Society of America

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. National Science Foundation, Grant No: 1838725. Role: PI. Years: 4<br>National Institute of Health, Grant No: R56AG061817. Role: Co-PI. Years: 1<br>New York State Department of Health. Grant No: DOH01-C31425GG-3450000. <br>Role: Co-I. Years: 5<br>National Institute of Health, Grant No: U01NS055903. Role: Site PI. Years: 4<br>National Institute of Health, Grant No: U01NS113851. Role: Site PI. Years: 5

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. None

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  4. Lori Quinn, EdD, PT,
    5. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. (1) Huntington Study Group, stipend

    Editorial Boards:

    1. (1) Physical Therapy Journal, Editorial Board member, 2017-present<br>(2) Journal of Huntington's Disease, Associate Editor,2017-present

    Patents:

    1. NONE

    Publishing Royalties:

    1. (1) Documentation for Rehabilitation: A guide to clinical decision making in physical therapy. Elsevier Publishing Company

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. (1) Huntington Disease Study Group<br>(2) Jacques and Gloria Gossweiller Foundation<br>(3) Parkinson's Foundation

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Martha A. Nance, MD and
    6. Scientific Advisory Boards:

    1. Executive Committee Huntington Study Group<br>Roche HDGENERATION1 DSMB<br>Uniqure DSMB<br>Novartis SAB

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. spouse received travel funding from Novocure<br>I have received travel funding from Huntington Study Group<br>I have received travel funding/honoraria from Parkinson <br>Study Group<br>I have received travel funding from Roche<br>I have received travel funding/speaker honorarium from <br>Parkinson's Foundation<br>I have received travel funding from Huntington Disease <br>Society of America<br>I received travel funding/speaker honorarium from <br>American Academy of Neurology

    Editorial Boards:

    1. Associate Editor, Journal of Huntington's Disease 2012-<br>present<br>Editorial board, Journal of Clinical Movement Disorders, <br>2020-present

    Patents:

    1. NONE

    Publishing Royalties:

    1. chapter in Juvenile Huntington's disease and other <br>trinucleotide repeat disorders, Oxford University Press, <br>2009

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. TEVA<br>Neurocrine

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Huntington's Disease Society of America<br>Parkinson's Foundation<br>CHDI<br>Park Nicollet Institute

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Anne Kloos, PhD, PT, NCS
    7. Scientific Advisory Boards:

    1. None

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. None

    Editorial Boards:

    1. Associate Editor of Journal of Neurologic Physical Therapy

    Patents:

    1. NONE

    Publishing Royalties:

    1. Medbridge Continuing Education courses<br>Neurologic Rehabilitation, McGraw Hill Education, 2017

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Michael J. Fox Foundation, Huntington's Disease Society of <br>America

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  1. Program in Physical Therapy (NEF), Wayne State University, Detroit MI; Physical Therapy Division (DK, AK), School of Health and Rehabilitation Sciences, The Ohio State University, Columbus; Program in Physical Therapy (AKR), Department of Rehabilitative and Regenerative Medicine, G.H. Sergievsky Center, Columbia University, New York; Department of Biobehavioral Sciences (LQ), Teachers College, Columbia University, New York; and Hennepin County Medical Center (MAN), Minneapolis.
  1. Correspondence
    Dr. Fritz nora.fritz{at}wayne.edu
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