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April 2022; 12 (2) Commentary

Development and Dissemination of a Neurology Palliative Care Curriculum

Education in Palliative and End-of-Life Care Neurology

View ORCID ProfileBenzi M. Kluger, Neha M. Kramer, Maya Katz, View ORCID ProfileNicholas B. Galifianakis, Steven Pantilat, Judith Long, View ORCID ProfileChristina L. Vaughan, Laura A. Foster, View ORCID ProfileClaire J. Creutzfeldt, Robert G. Holloway, View ORCID ProfileStefan Sillau, Joshua Hauser
First published January 27, 2022, DOI: https://doi.org/10.1212/CPJ.0000000000001146
Benzi M. Kluger
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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  • ORCID record for Benzi M. Kluger
Neha M. Kramer
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Maya Katz
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Nicholas B. Galifianakis
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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  • ORCID record for Nicholas B. Galifianakis
Steven Pantilat
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Judith Long
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Christina L. Vaughan
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Laura A. Foster
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Claire J. Creutzfeldt
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Robert G. Holloway
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Stefan Sillau
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Joshua Hauser
Departments of Neurology and Medicine (BMK, RGH), University of Rochester Medical Center, NY; Department of Internal Medicine (NMK), Rush University Medical College, Chicago, IL; Division of Palliative Medicine and Department of Medicine (MK, NBG, SP, JL), University of California, San Francisco; Department of Neurology (CLV, LAF, SS), University of Colorado Anschutz Medical Campus, Aurora; Department of Neurology (CJC), University of Washington, Seattle; and Departments of Palliative and Internal Medicine (JH), Northwestern University, Chicago, IL.
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Full PDF
Citation
Development and Dissemination of a Neurology Palliative Care Curriculum
Education in Palliative and End-of-Life Care Neurology
Benzi M. Kluger, Neha M. Kramer, Maya Katz, Nicholas B. Galifianakis, Steven Pantilat, Judith Long, Christina L. Vaughan, Laura A. Foster, Claire J. Creutzfeldt, Robert G. Holloway, Stefan Sillau, Joshua Hauser
Neurol Clin Pract Apr 2022, 12 (2) 176-182; DOI: 10.1212/CPJ.0000000000001146

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Abstract

Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. To meet this need, a group of experts in neuropalliative care and palliative medicine leveraged resources from the Education in Palliative and End-of-life Care (EPEC) program and the National Institutes of Nursing Research to create a library of modules addressing topics relevant for neurology trainees, palliative medicine fellows, and clinicians in practice. In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.

Footnotes

  • Funding information and disclosures are provided at the end of the article. Full disclosure form information provided by the authors is available with the full text of this article at Neurology.org/cp.

  • Received April 8, 2021.
  • Accepted August 9, 2021.
  • © 2022 American Academy of Neurology
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