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February 2022; 12 (1) Research

Advance Directive and POLST Documentation in Decedents With Dementia at a Memory Care Center

The Importance of Early Advance Care Planning

Georges Naasan, Nicole D. Boyd, Krista L. Harrison, Sarah B. Garrett, Talita D'Aguiar Rosa, Brenda Pérez-Cerpa, Shamiel McFarlane, Bruce L. Miller, Christine S. Ritchie
First published July 16, 2021, DOI: https://doi.org/10.1212/CPJ.0000000000001123
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Article Information

vol. 12 no. 1 14-21
DOI: 
https://doi.org/10.1212/CPJ.0000000000001123
Published By: 
Wolters Kluwer Health, Inc. on behalf of the American Academy of Neurology
Print ISSN: 
2163-0402
Online ISSN: 
2163-0933
History: 
  • Received February 3, 2021
  • Accepted July 6, 2021
  • First Published July 16, 2021.

Article Versions

Copyright & Usage: 
© 2021 American Academy of Neurology

Author Disclosures

    1. Georges Naasan, MD (georges.naasan{at}mssm.edu),
    2. Nicole D. Boyd, BA,
    3. Krista L. Harrison, PhD (krista.harrison{at}ucsf.edu),
    4. Sarah B. Garrett, PhD (sarah.garrett{at}ucsf.edu),
    5. Talita D'Aguiar Rosa, MD, MS (talita.rosa{at}gbhi.org),
    6. Brenda Pérez-Cerpa, MD (brenda.perez{at}gbhi.org),
    7. Shamiel McFarlane, MBBS, MSc (shamiel.mcfarlane{at}gbhi.org),
    8. Bruce L. Miller, MD (bruce.miller{at}ucsf.edu) and
    9. Christine S. Ritchie, MD, MSPH (csritchie{at}mgh.harvard.edu)
    10. on behalf of the GBHI Dementia Geriatric Palliative Care Writing Group
  1. Georges Naasan, MD (georges.naasan{at}mssm.edu),
    2. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  2. Nicole D. Boyd, BA,
    3. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  3. Krista L. Harrison, PhD (krista.harrison{at}ucsf.edu),
    4. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. National Institute of Aging, K01AG059831, PI, 2019-2024 National Institute of Aging, 3P30AG044281-08S1, project lead, 2020-2021 National Institute of Aging, P01AG066605, Project Lead, 2020-2025

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. Alzheimer's Association Global Brain Health Institute National Palliative Care Research Center

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  4. Sarah B. Garrett, PhD (sarah.garrett{at}ucsf.edu),
    5. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. 1) AHRQ T32HS022241; Health policy fellow; 5/2020- 5/2022 2) NIA K07AG066814 (Dohan; PI); co-investigator; 09/01/20-08/31/25 3) NIA K01AG059831 (PI: Harrison); consultant; 07/15/2019 – 02/29/2024

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  5. Talita D'Aguiar Rosa, MD, MS (talita.rosa{at}gbhi.org),
    6. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  6. Brenda Pérez-Cerpa, MD (brenda.perez{at}gbhi.org),
  7. Shamiel McFarlane, MBBS, MSc (shamiel.mcfarlane{at}gbhi.org),
    8. Scientific Advisory Boards:

    1. NONE

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. NONE

    Patents:

    1. NONE

    Publishing Royalties:

    1. NONE

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. NONE

    Research Support, Government Entities:

    1. NONE

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License Fee Payments, Technology or Inventions:

    1. NONE

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  8. Bruce L. Miller, MD (bruce.miller{at}ucsf.edu) and
    9. Scientific Advisory Boards:

    1. The Tau Consortium - Scientific Advisor The John Douglas French Foundation - Medical Advisor The Larry L. Hillblom Foundation - Medical Advisory Board The Consortium for Frontotemporal Dementia Research - Internal Advisor Global Brain Health Institute (GBHI) Co- Director University of Washington ADRC - External Advisor Stanford University ADRC - External Advisor Arizona Alzheimer’s Disease Center (ADC) - External Advisor Massachusetts Alzheimer Disease Research Center – External Advisor International Society of FTD - USA-President, Executive Committee

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. Cambridge University Press Guilford Publications, Inc. Oxford University Press Neurocase Elsevier, Inc. Up-to-date Frontiers ALS/FTD Journal (Taylor & Francis) - Editorial Board

    Patents:

    1. NONE

    Publishing Royalties:

    1. (1) Behavioral Neurology of Dementia, Cambridge University Press, 2009 (2) Handbook of Neurology, Elsevier Inc., 2009 (3) The Human Frontal Lobes, Guilford Publications, 2008 (4) Frontotemporal Dementia, Oxford University Press, 2014

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. NONE

    Speakers' Bureaus:

    1. NONE

    Other Activities:

    1. NONE

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. Quest Diagnostics Dementia Pathway Collaboration Research Grant

    Research Support, Government Entities:

    1. (1) NIA, P30 AG062422 PI, (2004-) (2) NIA, P01 AG19724 PI, (2002-)

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. NONE

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License fee payments, Technology or Inventions:

    1. (1) Dementia Care Pathway (Suite of tools to improve dementia diagnosis in primary care settings), Quest Diagnostics

    Royalty Payments, Technology or Inventions:

    1. (1) Dementia Care Pathway (Suite of tools to improve dementia diagnosis in primary care settings), Quest Diagnostics (As of 11/26/2019: No royalty payments have been received yet, but do have contractual rights to receipt of future payments)

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  9. Christine S. Ritchie, MD, MSPH (csritchie{at}mgh.harvard.edu)
    10. Scientific Advisory Boards:

    1. 1) Data Safety Monitoring Board for NIA (nonprofit)

    Gifts:

    1. NONE

    Funding for Travel or Speaker Honoraria:

    1. NONE

    Editorial Boards:

    1. Editorial Board, Journal of Palliative Medicine Editorial Board, Journals of Gerontology Editor, UptoDate

    Patents:

    1. NONE

    Publishing Royalties:

    1. Hazzard's Textbook of Geriatric Medicine UptoDate

    Employment, Commercial Entity:

    1. NONE

    Consultancies:

    1. American Academy of Hospice and Palliative Medicine

    Speakers' Bureaus:

    1. NONE

    Other activities:

    1. Royalties from the University of California San Francisco

    Clinical Procedures or Imaging Studies:

    1. NONE

    Research Support, Commercial Entities:

    1. 1) Humana Inc (research support)

    Research Support, Government Entities:

    1. National Institute on Aging National Institute of Nursing Research

    Research Support, Academic Entities:

    1. NONE

    Research Support, Foundations and Societies:

    1. The John A Hartford Foundation Centene Foundation Boye Foundation Alzheimer's Association

    Stock/Stock Options/Board of Directors Compensation:

    1. NONE

    License fee payments, Technology or Inventions:

    1. 1) Invention/technology (from the University of California San Francisco)

    Royalty Payments, Technology or Inventions:

    1. NONE

    Stock/Stock Options, Research Sponsor:

    1. NONE

    Stock/Stock Options, Medical Equipment & Materials:

    1. NONE

    Legal Proceedings:

    1. NONE

  1. Global Brain Health Institute (GN, KLH, TDAR, BP-C, SM, BLM, CSR), University of California, San Francisco; Department of Neurology (GN, BLM), Mount Sinai Hospitals, Ichan School of Medicine, New York, NY; Division of Geriatrics (NDB, KLH, SBG), Department of Medicine, University of California, San Francisco; Philip R. Lee Institute for Health Policy Studies (SBG), University of California, San Francisco, CA; Department of Neurology (TDAR), University of Louisville, Kentucky; Hospital Civil de Guadalajara (Hospital Civil Fray Antonio Alcade) (BP-C), Guadalajara, Jalisco, Mexico; and The Mongan Institute and the Division of Palliative Care and Geriatric Medicine (CSR), Department of Medicine, Massachusetts General Hospital, Boston, MA.
  1. Correspondence
    Ms. Boyd nicole.boyd{at}ucsf.edu
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