Achieving Life Milestones in Duchenne/Becker Muscular Dystrophy
A Retrospective Analysis
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Article Information
- Received December 30, 2019
- Accepted July 30, 2020
- First Published September 23, 2020.
Article Versions
- Previous version (September 23, 2020 - 12:48).
- You are viewing the most recent version of this article.
Author Disclosures
- Andrew Donaldson,
- Debra Guntrum, NP,
- Emma Ciafaloni, MD and
- Jeffrey Statland, MD
- Andrew Donaldson,
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- Debra Guntrum, NP,
(1)AveXis (2)Biogen (3)Sarepta (4)PTC
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(1) Biogen honoraria for nursing advisory board (2) PTC honoraria for nursing advisory board
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- Emma Ciafaloni, MD and
Sarepta Avexis Biogen Santhera PTC Wave Sanofi
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MedLink
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Oxford Press
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Center Disease Control Prevention: "Surveillance and Epidemiological Research of Duchenne and Becker Muscular Dystrophy"
Biogen
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Sarepta, PTC, Santhera, Orphazyme: clinical trial support
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- Jeffrey Statland, MD
1) Advisory Board - Fulcrum 2) Advisory Board - Sarepta 3) Advisory Board - Acceleron 4) Advisory Board - Dyne
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1) Acceleron 2) Fulcrum 3) Strongbridge 4) Dyne 5) Sarepta 6) Avidity
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1) NINDS 5U01NS101944-02, Role co-PI, 6/2017-present 2) NCATS R21TR003184-01, Role co-PI, 6/2020-present
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1) FSH Society Grant - FSHD clinical trial research network 2) MDA Infrastructure Grant - 06/2018 - present 3) Friends of FSH Research - MOVE FSHD study
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- University of Kansas Medical Center (AD, JS); and University of Rochester Medical Center (DG, EC), NY.
- Correspondence
Dr. Statland JStatland{at}kumc.edu
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